Steve Supports Cystic Fibrosis Week(July 02, 2013)
Steve Rotheram MP met with representatives of the Cystic Fibrosis Trust and families affected by cystic fibrosis at an event at the House of Commons on Tuesday 25 June. The event aimed to raise awareness amongst MPs and other key decision-makers about important issues for people with cystic fibrosis and the transplantation process.
1 in 3 of those with cystic fibrosis who are on the transplant list will die waiting. Cystic fibrosis is a life-shortening genetic condition affecting 10,000 people in the UK. New treatments and better clinical care are helping people with cystic fibrosis to live longer but many will still reach a point where their only hope is a double lung transplant.
Steve explained, “I was delighted to attend this event and learn first hand some of the issues that affect my constituents living with cystic fibrosis. I was also able to learn about the work of the Cystic Fibrosis Trust and find out more about their open consultation looking at the issues affecting the number of lung transplants for people with cystic fibrosis.
“Too many people with cystic fibrosis are waiting for lungs that will never arrive and they will die on the waiting list. I am delighted to be supporting this issue and the national consultation which is looking at how transplantation rates can be improved for people with cystic fibrosis.”